‘Doctors thought our son had acid reflux disease however then discovered 28mm mind tumour’

Beth Olone and Jake Hogg, from Middlesbrough, are dad and mom to now 20-month-old Mason Hogg. Beth underwent an early emergency C-section to have Mason, and shortly noticed her new child was scuffling with a number of signs.

Mason had “jittery” actions, struggled sleeping and underwent remedy for various circumstances earlier than being recognized with a non-cancerous tumour referred to as hypothalamic hamartoma. Dad Jake says his son now has “up to 100” seizures a day, however says Mason is “one of the happiest babies you’ll ever meet”.

Beth had suffered with pre-clampsia – a situation which causes hypertension throughout being pregnant – and was already staying at James Cook University Hospital when medical doctors observed Mason’s coronary heart price was dipping low.

She was then rushed for an emergency C-section following a placental abruption and Mason was born six weeks and 4 days early. He weighed simply three kilos and three ounces and was saved within the neonatal unit for 3 weeks.

When he weighed 5 kilos the couple took him residence, however the tot was again in hospital for an operation on an inguinal hernia in his groin. And his mum and pa observed he was making “awkward movements”.

Jake, 27, stated: “When he came out, he seemed to be in pain and was making some awkward movements. He had an arched back and was just genuinely not himself – once a week, he would then get these jittery movements and he couldn’t sleep.”

They took him to A&E a number of instances and medical doctors initially thought Mason had a milk allergy, then acid reflux disease. But Jake says the treatment did not assist.

Beth wakened on August 31 to Mason having a “massive fit” and being “unresponsive”, calling an ambulance. He was rushed to hospital and positioned on oxygen. Doctors discovered his sodium ranges to be low and stopped the acid reflux disease treatment however issues did not enhance.

Taking him again to hospital after his emergency go to, the couple have been decided to seek out solutions. Then a physician informed them she “won’t let you go until we know what’s going on”. Mason had a sonogram to examine his kidney operate after which underwent a CT scan on his head.

Jake stated: “That’s how we found out he had a tumour. They told us first that they saw something in his brain but didn’t know much. They said they had been in touch with the RVI in Newcastle and that they were on their way now.”

Following an MRI scan the medical doctors informed Jake and Beth Mason’s tumour was “really deep” and near the hypothalamus and pituitary gland.

Jake stated: “They knew where, but not what. We decided to go in for a biopsy and open brain surgery.” He the tumour was 28mm in diameter.

Mason was then recognized with hypothalamic hamartoma, which presents with gelastic seizures. These could cause him to chuckle or giggle. Jake defined: “The seizures are not controlled, but they are controlled to a degree with medication.”

Since the prognosis, Jake and Beth have taken Mason to Great Ormond Street Hospital in London for additional assessments and now are on the wait listing for laser ablation surgical procedure. This will “create a legion around the tumour”.

The surgical procedure has a 79 % success price and medical doctors hope it can cease Mason’s seizures.

Mason now has his blood taken each two weeks to watch his sodium ranges, and his dad and mom have felt the stress with Beth now recognized with PTSD.

Now Beth, a head of 12 months at a Teesside school, will run the Great North Run in September elevating cash for the Sick Children’s Trust that helped her household “when we needed it the very most”.

The charity helps households of sick youngsters and runs The Crawford House, the place Beth and Jake stayed freed from cost whereas Mason recovered from surgical procedure.

Jake stated: “It would’ve been a nightmare if we didn’t get that” and that it “made a massive difference”.