Disney-themed funeral for little boy born with genetic mutation
T
he lifetime of just a little boy who by no means stopped smiling has been celebrated at a Disney-themed funeral.
Noah Cox-Lee, aged 5, was born with a genetic mutation and spent most of his life out and in of hospital with the uncommon neurological situation FOXG1 syndrome, his mom Channell Cox-Lee mentioned.
“Even with all that going on there wasn’t a day that he didn’t smile,” mentioned Mrs Cox-Lee, 27, of Basildon, Essex.
He died on May 17.
Noah was a fan of Disney cartoons – together with his favourites together with Moana, Cars, Stitch and Encanto – and Disney was the theme for his funeral on Friday.
His coffin was adorned with a few of his favourites, together with Cars, and funeral administrators wore fancy gown – with one as Buzz Lightyear and one other in a Moana costume.
Scores of bikers supplied an escort to the funeral cortege, after phrase unfold on social media, with members of the Thurrock Bikers group accompanying the hearse to Basildon Crematorium.
Many of the just about 200 riders donned fancy gown, with one as Sulley from Monsters Inc, a Spiderman and a Batman among the many vibrant assortment of fictional favourites.
Mrs Cox-Lee mentioned she and her husband Terence Cox-Lee, 29, have been “so appreciative of everyone getting involved”.
“Honestly, it’s absolutely amazing,” she mentioned.
“We’re so appreciative of everyone getting involved.
“Being our little boy, you want to give him the world.
“The fact is we can, and everyone’s come together to give him that.
“Even though it’s turned our world upside down and we’re so heartbroken, the fact is everyone’s got together to celebrate his life and all we’ve ever wanted is for him to be remembered.
“For everyone to come together and celebrate what he was, no matter what he went through he was always smiling through it.
“Sometimes it puts it in perspective.
“You can be having such a bad day over something so little, but he was going through so much and yet he never let it affect him.”
Mrs Cox-Lee, who’s a full-time carer, mentioned there “wasn’t a day where he wasn’t smiling”.
She mentioned that Noah was in a wheelchair and had “such low muscle tone he couldn’t move his body, he couldn’t walk, he couldn’t hold his head, he couldn’t sit up”.
“He was fed completely through a peg,” she mentioned.
“He couldn’t take anything orally.
“He suffered with gastro issues, with swallowing issues, his vision was affected as well.
“I think that’s where his love of Disney came from because of the bright colours.
“The music, the songs, anything like that.
“He was very cheeky as well.
“If he didn’t have his Disney or something on the TV that he wanted he would basically start mumbling and making noises until you did put it on for him.”
She mentioned his favourites have been “basically all the musicals”.
“He was such a delight,” mentioned Mrs Cox-Lee.
“He would just smile and it would brighten up your day.”